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Showing posts from November, 2021

Let's Discuss Epilepsy with Kids

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All month I've been blabbing my head off about epilepsy, and what it means to go beyond seizure first aid.- I should put that on a shirt! Today I went beyond seizure first aid and I was an advocate for epilepsy!  A month ago I spoke to my daughters teacher about what to do in an emergency for a seizure. After making her aware of seizure first aid I told her about Purple Day which was an idea 💡 I was given from the epilepsy foundation, but everyone wore purple at Gideons. It began as a simple class focused project and became a school wide thing.  I was minding my own business a few days ago, and I got an email from Parent Square saying to remember to wear Purple for Epilepsy Awareness Day! I was so excited that this effort was made on the part of Gideons Elementary which is a Kindezi school! This went from a small conversation on the phone with her nurse and her teacher about a small presentation to a school wide event. They have been incredibly instrumental in mak...

My Personal Seizure Story

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As you know this month is important to me because it's epilepsy awareness month. I've taken the time this month to post very little about my business and more about my epilepsy life. My goal is to raise awareness about epilepsy, but not only to be able to do seizure first aid. I want people to begin to look beyond seizure first aid and know what it means to befriend someone who has epilepsy.  Every story I've posted has been near and dear to my heart and I'm going to try my best to create a post that will explain every one of them in brief detail.  In my first post on Facebook I left my seizure profile up for anyone to read so they can learn about my epilepsy story. My posts gradually grew from there. I'd like to share the most pivotal posts that I can only hope changed the way people think of epilepsy, and people living with it.  My Epilepsy Profile The purpose of my epilepsy profile was to give people a small view of what epilepsy is in my life. My goa...

Anya Shares Her Seizure

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It was November 3, and all was well. I woke up at my usual time. I'm not a morning person either way, so I may have been grouchy but I was okay. It was the kids official day back to school after Election day, and Anya was ready to go. She had a purple flower hair clip that I'd handcrafted in her hair, and she was excited about it. When I told her why I wanted her to wear it she understood. When I was a kid I don't remember epilepsy being such a huge conversation. I knew I had it and I knew how it made me feel, but seizure first aid was probably the only thing taught about epilepsy back then. At one point in time people were even misinformed about that. They used to think to put a spoon in a person's mouth to keep them from biting their tongue, but on the contrary that is awful because it can cause their teeth to break if the person having the seizure is grinding their teeth.  Anyway, by the time I was a kid science had come along but it was still so little. ...